One of the members of our private group shared this story with us and asked us to publish it to spread the knowledge of our disease. This is what you need to know about people with fibromyalgia.
1. My pain
My pain is not your pain. It is not caused by inflammation. Taking your medication for arthritis will not help me. I can not relieve or shake my pain. It is not even a pain that remains. Today it is on the shoulder, but tomorrow it can be stopped or disappeared. It is assumed that my pain is caused by incorrect signals sent to the brain, possibly as a result of sleep disturbances. It is not well understood, but it is real.
2. My fatigue
I’m just tired. I am often in a serious state of exhaustion. You may want to participate in physical activities, but I can not. Please do not do it personally. Yeah, yesterday you saw me shopping in the mall, but today I can not help you with gardening, it’s not because I do not want it. Most likely he will pay the price for emphasizing the muscles that exceed his capacity.
3. My forgetfulness
Those who suffer from it call it Fibronzebla. You may not remember his name, but I must remember it. You may not remember what I promised you to do, although you told me a few seconds ago. My problem has nothing to do with my age, but it may have to do with a lack of sleep. I do not have selective memory. In some days I simply do not have a short-term memory.
4. My awkwardness
If I walk on your toes five times or clean you five times, I will not lead you deliberately. I do not have muscle control for that. If you stand behind me on the stairs, be patient. Nowadays I take life and the stairs step by step.
5. My sensitivities
I can not stand it! “This” can be a number of things: bright sunlight, loud or sharp noises, smells. FMS is called “everything that exacerbates the disaster”. Do not let me open the curtains or hear your son scream. I really can not stand it.
6. My intolerance
I also can not stand the heat. Or humidity If I am a man, I sweat … abundantly. If I am a lady, I sweat. Both are equally outrageous, so I do not feel compelled to point out this shortage in me. I know And do not be surprised if you shake uncontrollably when it’s cold. I also do not tolerate the cold. My internal thermostat is broken and nobody knows how to fix it.
7. My depression
Yes, there are days when I would rather stay in bed or at home or die. Severe and relentless pain can cause depression. Your sincere concern and understanding can get me off the edge. Your sarcastic comments can get me to the limit.
8. My stress
My body can not handle the stress well. If I have to stop working, have to work part-time or have to manage the responsibilities of my house, I am not lazy. Daily stress aggravates my symptoms and can completely disable me.
9. My weight
It can be fat or I can be skinny. Anyway, it is not out of choice. My body is not your body. My brain center is broken and no one can tell me how to fix it.
10. My good morning
If you see me smiling and working normally, do not assume that I am like that. I suffer from pain and fatigue, a chronic illness that can not be cured. I can have my good morning, weeks or even months. In fact, good morning are those who help me forward.
11. My uniqueness
Even those who suffer from FMS are not the same. That means you do not have all of the above problems. I have pain above and below the waist and on both sides of my body that has lasted a long time. You may have migraine or hip pain or pain in your shoulder or knee, but they do not have exactly the same pain as another person.
12. My handicap
My handicap is invisible but still exists. It is the same that you do not see air, but it is present, the same thing happens with fibromyalgia, it exists, it is real. Not everything is in our heads, when it was then, why do not I put something on my head that is more recognizable as cancer, etc. We place this disability logo of fibromyalgia in their cars and spread awareness fibro.