Fibromyalgia, a slow death: a disease that can take up to 10 years to be diagnosed

Fibromyalgia is not seen, suffers. Fibromyalgia is invisible, but not millions of people who suffer from it.

Because fibromyalgia has become a health problem.

While institutions continue to look elsewhere, fibromyalgia is a reality that is growing and that does not include social class, cultural level, age or cardinal point. It can start in childhood and worsen over the years, with the onset of new symptoms.

Far from being psychological, as many have insisted, the latest global research suggests that this is a neuroimmune disease and thus compromising all body systems and may have more than thirty different symptoms. The most disabling are chronic pain and fatigue.

“Fibromyalgia is a chronic and debilitating disease of unknown cause and without effective treatment.”

For many years he avoided this definition and preferred to blame the liar patient, nurse, neurotic, depressive, deceitful, victim … to the point that most people believed that fibromyalgia was synonymous with storyteller and all forums were spoken. Disdainfully and distrustful of these patients.

The people involved are exposed to a “popular trial” with the verdict: “life imprisonment”, ordered to be blocked in their home, not to prepare, not to smile … because if they do, they are redesigned. “It will not be so bad when it’s all fixed” “Look how he laughs, he will not do too bad …”

In addition to getting sick, society questions its right to live and be happy. People with physical difficulties who are successful in sport or on the personal level are examples to follow and inspire admiration, and no one doubts their disability. This admiration and empathy are evident in all illnesses, except in fibromyalgia.

The patient with fibromyalgia who can be happy despite the disease and succeed despite great difficulties, is not valued for his strength and desire to excel, nor as an example of life, is simply a reason to question his diagnosis and, therefore, the professionalism of the doctor who gave you.

The fact that the harsh reality of this harsh disease was denied for so long has caused irreparable physical and mental harm to many people affected.

In health, polypharmacy was abused and drug addicts were created, and the fact that their environment and society were “nothing” led to family disintegration, harassment, and dismissal. and unfavorable judgments. Inability to work.

When, despite all this collateral damage, the patient plunges into a depression, the one who remains obsessed with denying the evidence is confirmed by the fact that “his problem is psychological.”

Years ago, we could justify this “inadequate treatment” because of the ignorance of the origin of the pathology, but after thirty years it does not work anymore. Although we do not yet know the source, although there is still no measurable marker, it is time to take responsibility and start looking for them.

Because fibromyalgia has gone from a health problem to a social problem. It concerns 5.4% of the population, of which 92.7% are women at risk of social exclusion.

“Fibromyalgia is a chronic disease and incapacitating condition, of unknown cause and no effective treatment.” This is a simple and easy to understand phrase, it is time to accept it, to take your responsibilities and act accordingly, eg by investing in research and resources for the adequate treatment of the disease.

Fibromyalgia is not just a pain, as they say, as if it were not much. It affects the whole body, so the patient goes from specialty to specialty for years, until he finally receives a diagnosis that does not help much, because the prescription does not make the pain disappear.

This results in an extraordinary expense for the health care system and a waste of time for the patient, which increases the symptoms of the side effects of polypharmacy and frustration. The frustration is also shared by doctors who want to help the patient but feel helpless because of the lack of time in the consultations and the resources to consult them in a multidisciplinary way, as they deserve.

The solution is to have the political will to invest in the research and training of medical specialists who manage these units. This form of care would cost the system less money and improve the patient’s quality of life, and consequently the family and work environment. Perhaps one of the reasons why you are not studying is that “fibromyalgia does not die …”

With fibromyalgia, you do not live, you survive

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